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Patient resources

Neuroendocrine tumours: A guide for patients and carers

This booklet has been developed for people with neuroendocrine tumours (NET). It contains information to help understand diagnosis and treatment options.  This booklet may also help when talking about NETs with family and friends.

Click on booklet to download your free pdf copy.




Nutrition and Neuroendocrine tumours

This booklet has been developed to provide information on the nutritional needs of people with NETs and how to manage issues that can involve nutrition.

Click on booklet to download your free pdf copy.





Neuroendocrine tumours: A guide for healthcare professionals

This booklet has been developed for healthcare professionals to improve understanding and knowledge about neuroendocrine tumours (NETs). This booklet may be useful to pass on to your healthcare team. Click on booklet to download your free pdf copy.





NET Treatment and Wellness Care Plan

This document was designed designed in collaboration with the Australian Cancer Survivorship Centre - A Richard Pratt Legacy (ACSC) to help NET cancer patients and families keep track of all aspects of their treatment and care. The document provides a central location to record important information related to your diagnosis, treatment and ongoing care.

Click here for more detail and link to download.





Fact Sheet - Diagnosing Phaeochromocytomas and Paragangliomas (PPGLs)

This fact sheet contains useful information relating to Pathology Specimen Collection instructions.

Click on the fact sheet to download your free pdf copy.







Fact Sheet - Vitamin and Mineral Deficiencies

This fact sheet contains useful information on how to address nutrient deficiencies that commonly occur with NETs.

Click on the fact sheet to download your free pdf copy.







Unicorn Foundation Information Brochure

 

Click on the brochure to download your free pdf copy.











Food and Symptom Diary


This worksheet has been developed to assist with tracking food/drink intake and associated symptoms for discussion with your Health Professional.

Click on the worksheet to download your free pdf copy.

 

Patient Card - Bathroom

These cards have been developed to assist patients who require urgent access to bathroom facilities.
Click on the card to download your free copy .

 

Patient Card - Medical Alert

 
These cards have been developed to assist patients with medical alert information.
Click on the card to download your free copy.

Basic Testing sheet for GastroEnteroPancreatic (GEP) Neuroendocrine Tumors (NETs)

Click this link to download and print up sheet to give to your doctor if you suspect a GEP-NET.