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8 Mar 2018 at 12:00AM

Survivorship Conference Feb 2018


Unicorn Foundation NET Nurse Kate Wakelin attended the 2nd Victorian Cancer Survivorship Conference in February 2018.  Read Kate's reflections on this informative event below....

Earlier in February I had the opportunity to attend the 2nd Victorian Cancer Survivorship Conference at The Walter and Eliza Hall Institute in Melbourne.

This was preceded by a day of networking with other not-for-profit organisations who provide services to cancer survivors. This day was a brilliant opportunity to showcase services, explore common issues and identify opportunities for collaboration. Many valuable connections were also made over this time.

The conference itself provided a fast-paced series of presentations over the two days, with a diverse range of national and international speakers. One of the things that was particularly encouraging was discussion around how the term “survivorship” has evolved particularly in terms of its approach to people who are having ongoing management for metastatic cancers and those who are living with their illness as a chronic condition – something obviously very relevant to people affected by NETs.

One of the major areas of focus was in the use of survivorship care plans (SCPs). This was very timely for us as an organisation, as we have been collaborating with the Australian Cancer Survivorship Centre in developing a NET specific SCP, so it will be very useful to draw on this current research as we move ahead with this project.

It was also fantastic to see NETs represented, both in the oral presentations, with Dr David Wyld (QLD) providing great insights in his presentation: “How the rare see their care: perceptions of care and patient reported outcomes in people living with neuroendocrine tumours. Exploration of perceptions of care and patient reported outcomes for people with NETs”, and Dr Gabrielle Cehic presenting some of the current impressive international collaborative work that is being done in her poster: “The challenges of designing and implementing a structured, international multicentre audit on health-related quality of life (HRQOL) and markers of response in patients with neuroendocrine neoplasms (NEN) treated with peptide receptor radionuclide therapy (PRRT)”.

As always, the official content of these events is only part of the equation, with much of the value being in the interactions that take place during the informal program. It was fantastic to catch up with colleagues I already knew, as well as to meet new faces and explore ideas and approaches to challenges. I emerged feeling inspired and energised, looking forward to continuing the work the Unicorn Foundation are doing in this space.




Category: Advocacy